Saturday, May 14, 2016

Not As Strong

I got discharged from hospital yesterday.

Apparently things i do now are getting strenuous. Sit too long and my back aches. Standing and cooking too long also back aches.

The worst is sitting on the floor and trying to get up. I feel like my legs could give way anytime.

Sigh. That's me. I'm trying to enjoy myself as much as i can away from the hospital. Even if its just staying home.

Friday, May 06, 2016

Hospital Again

It's the 6th of May.
Which means that I have been hospitalised for about 16 days.
I still have about 5-6 days left to be discharged.

It all started on 21st April when i started to have pain on my neck, and suddenly that morning, my fever just kept going up and up. Went to A&E and got admitted for neutropenic fever.

It's basically because I went for chemo and that my Neutrophil counts are low, causing me to have fever. In this case, I had tonsilities and there was bacteria running in my blood.

I was at Ward 8A at Kent Ridge Wing. It was those single bed ward. My fever was around 38-40 degrees for many days. My sanity depended on paracetamol a lot. I puked a lot too, and there was a lot of phlegm due to the tonsilities.

I think it lasted for about a week or so.

After they injected the white blood boosters, I got better and was tranferred to ward 56. Then the doctors were saying that i looked better now and said that i could probably go back home on Tuesday, 3rd May. Then the next one was saying i could potentially go back home.

So on Wednesday, i cried like shit wanting to go back home. They kept on saying that they need to observe another 1-2 days blah3. But in actual fact, it's longer than that. The pregnant doctor came in to talk to me and said that i still have bacteria in my blood and that i need to finish the whole course of antibiotics, which was scheduled for 14 days.

And i still have about 7 days left. LIKE, WTF. What's with all the hope of going back and all that when i still have 7 FREAKING MORE DAYS LEFT.

So okay, i accepted.

Then the next day, the nurses were talking about de-isolating me. Another sucky news.

1) If i am not isolated, i might catch whatever bug there is outside, and then repeat the process of falling sick blah3.

2) My husband cannot accompany me if i am at a 6 bedder room. He can stay with me if i am isolated. At least i wont be so alone.

Sigh.

So then the Ward Sister was saying currently they dont have a bed outside. And as per hospital policy, if my counts are okay, I have to make way for other neutropenic patients to stay in the isolation room.

Fine. Not that i have a choice anyway. Not even for 1 week.
So okay, whatever. Just waiting for time to move out from here.

This morning the doctor was saying that my white blood count went down, again.

So, we'll see then. See whether i will continue staying here or move out.
So sian you know.

Now, the plan is to stay here till Wednesday or Thursday next week.
Then go home for about a week, then report back to hospital for the final step.

Bone Marrow Aspiration.
Chemo
Radiotherapy
Stem Cell Transplant.


I know i should look forward to getting better.
But it's not gonna be easy.
I'm not looking forward to all the side effects especially the FEVER.
I seriously have grown a phobia out of fever.

This year, cannot puasa.
I will probably be spending Hari Raya in the hospital too.
So sad.

I'll probably be out end of July.
After that I'll be staying with the In-Laws.
I think that's the best option for now. They are at home most of the time and they cook everyday.
And the bedroom got aircon.

So all i need to do is recover.

Well, that's the plan for now.